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RÉMI

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Caregiver vs. Parent

I read an interesting quote the other day from another grieving momma about the role of parenting versus caregiving. "We assume that...

Anniversaries

Anniversaries are a funny thing. Often they are things you celebrate like a wedding or birthday. Sometimes they mark something a little...

How Quick we Forget

It's 4:30am and I'm sitting in a prized rocker that doesn't quite rock. It's hot. Too hot. I can hear the IV pump delivering fluids, the...

When it Rains it Pours

Or snows. The timing is right for both really. Usually right around Halloween night we are in for our very first snow of the year. This...

Don't Touch the Baby

The seasons are changing once again. Pumpkin spice everything, crisp leaves on the ground, cool wind blowing us right into cold, flu and...

6 Months Old

Rémi is 6 months old today and we've been home just over a month with him already! This past month at home has been a busy blur. Between...

On the Move

This past week has flown by. We had our first bottle feed, followed by our first attempt at breast feeding, our first outside visit and...

First Oral Feed

I can't believe I'm actually writing this. With Rémi’s surgery complete one of the next big things for him to learn is how to eat by...

On the Other Side

It's been just over 2 weeks since Rémi had his big surgery. His esophagus is now connected, and his trachea has been stitched to both the...

Recovery Day 6

Rémi continues to amaze me with his spunk and sass. As you may remember he was supposed to be completely sedated, and paralyzed with a...

Surgery Day

8:15am: Getting ready to transport Rémi to preoperative OR 9:30am: Rémi is now in the OR. He will first have a bronchioscope to determine...

The Moment We've Been Waiting For

Rémi is having surgery tomorrow. Just like that, the moment we've been been waiting for is here. You think I'd be excited that the...

Grief and Gratitude

Grief is a strange thing. It's nearly impossible to explain to someone who has never experienced it. Yet even those who have been...

Physical Manifestations of Stress

David and I were having a conversation about our stress levels, one of many touch points we have daily about how we are each coping with...

Fed is Best.

I've struggled with the words to start this post. I know so many moms who have struggled with the "how" of feeding their new babes. I'm...

Testing, Testing...

February has been a blur. At the beginning of the month, Rémi spiked a fever prompting a round of antibiotics to treat for potential...

Code Blue

If you've ever spent any time in a hospital, you become accustomed to the regular calls over the intercom. They range from the almost...

Medical Diagnosis

I love learning. I’m a curious person by nature, ask a million questions (just ask my husband how much fun it is to watch a documentary...

One Month Old!

I had the best intentions of making Rémi’s hospital stay as close to normal as possible. That includes celebrating milestones, like...

Introducing Rémi David LeGros

January 4th, 2023 Rémi was born at 37+2 weeks at Mt. Sinai hospital weighing just 4lbs 9oz. While he was a bit early of his due date, we...

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A Toddler and a Baby

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